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Pediatric Palliative Care and Hospice: Communication and Self-Care

presented by Joan Chrastek, RN, CHPN, DNP, FPCN

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Disclosure Statement:

Financial: Joan Chrastek receives compensation from MedBridge for this course. There is no financial interest beyond the production of this course.

Non-Financial: Joan Chrastek has no competing nonfinancial interests or relationships with regard to the content presented in this course.

Satisfactory completion requirements: All disciplines must complete learning assessments to be awarded credit, no minimum score required unless otherwise specified within the course.

MedBridge is committed to accessibility for all of our subscribers. If you are in need of a disability-related accommodation, please contact [email protected]. We will process requests for reasonable accommodation and will provide reasonable accommodations where appropriate, in a prompt and efficient manner.

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Video Runtime: 40 Minutes; Learning Assessment Time: 23 Minutes

Good, compassionate communication is an essential skill for nurses to have as they care for children who need hospice or palliative care and their families. This topic can be challenging to navigate, especially when talking about death with children and their families. This course provides an overview of communication during pediatric hospice and palliative care. Jody brings in bereaved parents to talk about what was helpful to them, as well as what was hurtful, to help health care providers learn to communicate more effectively and compassionately. This course also provides information on self-care. Individuals can only be compassionate to others if they are compassionate to themselves. The course provides a simple self-care plan that is a useful tool for health care providers.

Meet Your Instructor

Joan Chrastek, RN, CHPN, DNP, FPCN

Joan "Jody" Chrastek was born and brought up in India and trained as a nurse in Scotland. She has worked as a midwife and hospice nurse in the UK, India, and the USA with adults and children. She has worked in hospice and palliative care for more than 35 years in both inpatient and community…

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Chapters & Learning Objectives

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1. Talking With Children About Death

Children can ask difficult questions like, “Am I dying?” This chapter introduces ways to communicate honestly and compassionately. Jody provides practical ideas and a useful handout that will help nurses develop their own strategies for talking to children about death.

2. Communicating With the Family About the Child’s Death

Providing pediatric hospice and palliative care means providing support for the whole family, including the siblings. This chapter introduces strategies to discuss death with siblings and provides suggestions of how to engage them in discussion to be better able to support them.

3. "But What About Me?": Self-Care for the Clinician

Unfortunately, the term “self-care” is often overused, making nurses’ eyes glaze over, yet providing hospice and palliative care to children can take its toll. It’s important to make care plans for yourself, not just patients. In this chapter, Jody teaches you how to make one for yourself and includes ways to have fun.

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